Pompe Disease News Columnist - Bionews - Remote

Mon, 09 Mar 2026 02:32:30 -0500

Job Opening Details:

Bionews, a digital news company dedicated to creating communities for patients with rare and chronic diseases and their caregivers, is looking for members of the Pompe disease community to join our freelance staff of patient and caregiver columnists on Pompe Disease News.

A Bionews columnist is a patient or caregiver who shares about life with a rare or chronic disease. They write personal essays in a column format to inform, inspire, empathize, and advise. Their audience includes patients, caregivers, medical teams, and researchers. Columnists also write to a general audience interested in learning how to improve society's understanding and treatment of disease/disability communities.

All columns are reviewed with a critical eye by professional editors who will work with columnists to smooth rough spots and help the columnist grow as a writer. This is a contract position.

Please note you MUST be a member of the Pompe disease community -- patient or caregiver -- in order to apply for this position.

Responsibilities and Duties

Fulfill 1x weekly deadlines as agreed upon on hire.

Communicate efficiently with your managers and editors.

Submit 400-800 word drafts that adhere to Bionews policies and procedures.

Aside from exceptions, drafts should not take more than 45 minutes to edit.

Fulfill revisions as requested by editors in a timely manner.

Complete training assigned by Bionews HR.

Experience Required

Prior experience with writing for an audience.

At least three months’ direct experience with having or caring for someone with Pompe disease.

Caregivers must be direct relatives, guardians, or spouses.

Experience Preferred

Experience in being professionally edited for publication.

Experienced in generating a blog or column.

Participation in support groups, internet forums, or community groups relevant to Pompe disease.

Knowledge Required

Fundamentals of how Pompe disease works.

Knowledge Preferred

The content needs or wants of the Pompe disease community.

Skills Required

A swift and independent learner of Internet technology.

A creative mind capable of regularly generating unique content that appeals to target audiences.

Time management.

Advanced creative writing.

Skills Preferred

Experience in using WordPress for content creation.

Experience with the Slack communication app.

Abilities Required

Internet access and use.

Native or fluent English writing and reading abilities.

Who is Bionews?
Bionews is a leading online health, science, publication, and research company with one purpose: to serve patients with a rare or chronic disease. We do this by connecting them with current, trusted, and relevant news and information. This content is delivered regularly and provided by actual patients as well as professional journalists, writers, editors, scientists, and experienced media executives. Our end customers are truly patients living with rare and chronic diseases. Visit www.bionews.com for more information.

Bionews Vision
To empower, inspire, and champion the patient voice as the preeminent resource that engages, informs, and connects the global rare and chronic disease community.

Bionews Purpose
We connect rare and chronic disease communities by providing a unified and distinctive space to engage, educate, and empower those affected by rare diseases to help improve patient health and quality of life.

Values: R.A.R.E.

RESPONSIBILITY

ADVOCACY

RELATIONSHIPS

EMPOWERMENT